TED演讲：共创残疾友好未来的四种方法

发布于 2026-10-31 · 时长 9:04

字幕摘录

时间	英文	中文
0:04	I've never known life without disability.	我从来没有见过没有残疾的生活。
0:07	Disability is where a physical or mental condition or impairment	残疾是指身体或精神状况或缺陷
0:11	is combined with physical or social barriers	与有形或社会障碍相结合;
0:14	that make it hard for a person to do certain things	让人很难做某些事情
0:16	or interact with the world around them.	或与周围的世界互动。
0:19	Disability is very diverse,	残疾种类繁多,
0:21	with a wide range of experiences	具有广泛经验
0:23	that can affect a person's ability to see, move, hear, learn, communicate,	能够影响一个人的视力,运动,听觉,学习,交流,
0:29	or interact with others.	或与他人互动。
0:30	In my case, my sister Erin is autistic and has intellectual disabilities.	就我而言,我妹妹艾琳患自闭症,有智力残疾.

展开字幕全文（174 条）

序号	英文	中文
1	I've never known life without disability.	我从来没有见过没有残疾的生活。
2	Disability is where a physical or mental condition or impairment	残疾是指身体或精神状况或缺陷
3	is combined with physical or social barriers	与有形或社会障碍相结合;
4	that make it hard for a person to do certain things	让人很难做某些事情
5	or interact with the world around them.	或与周围的世界互动。
6	Disability is very diverse,	残疾种类繁多,
7	with a wide range of experiences	具有广泛经验
8	that can affect a person's ability to see, move, hear, learn, communicate,	能够影响一个人的视力,运动,听觉,学习,交流,
9	or interact with others.	或与他人互动。
10	In my case, my sister Erin is autistic and has intellectual disabilities.	就我而言,我妹妹艾琳患自闭症,有智力残疾.
11	She processes the world differently.	她处理的世界不同。
12	She enjoys riding her bike, collecting rubber ducks,	她喜欢骑自行车收集橡皮鸭
13	重复观看YouTube视频,
14	and spending the money she earns at work.	把钱花在工作上
15	When she's really happy, she squeals and flaps her hands.	当她真的快乐时,她会尖叫和拍手.
16	Though for many people, Erin is different, she is my normal.	虽然对许多人来说,艾琳是不同的,她是我的正常人.
17	In my family, we were raised with a core value that different is not less.	在我家里,我们成长的核心价值并不小。
18	But it was made clear to me	但我已经明白
19	that the rest of the world didn't always share this value.	世界其他地方并非总能分享这种价值。
20	Like I'll never forget one time in middle school,	就像我永远不会忘记一次在中学,
21	my sister's aide had made a video of her learning	我姐姐的助手拍了她的学习录像
22	how to communicate using speech and sign	如何使用语音和签名进行通信
23	and thriving in an inclusive classroom	在包容的课堂上兴盛
24	where she was loved and accepted just for who she is.	在那里,她被爱和接受只是她是谁。
25	And I brought it to school wanting to share	我把它带到学校想要分享
26	to give my classmates the opportunity to learn more about autism,	让我的同学们有机会更多地了解自闭症
27	only to be told by my teacher	只听老师讲
28	that the faculty had decided against it to protect me	教职员工决定不保护我
29	from other students inevitably making fun of her.	从其他学生不可避免地取笑她。
30	It was one of many instances that taught me what stigma was.	这是教会我什么是耻辱的许多例子之一。
31	With every rude comment	每一个粗鲁的评论
32	when Erin would have a sensory meltdown in a public place,	当艾琳在公共场所发生感官崩溃时,
33	with every casual use of the slur retard	随心所欲地使用稀释剂
34	by even childhood friends of mine,	连我童年的朋友,
35	with every judgmental stare,	以每一次判决的眼光,
36	I learned that the rest of the world	我学会了世界其他地方
37	didn't necessarily see Erin for the full human being that she is.	不一定看到艾琳是完全的人类
38	Now, when I went off to college,	我上大学时
39	I didn't know what role, if any,	我不知道什么角色,如果有的话,
40	disability would play in my life outside my family.	残疾会在我的生活中在我的家庭之外。
41	It wasn't until I studied abroad in China	直到我出国留学
42	for my international relations major	我的国际关系
43	that my personal background with disability and my career came together.	我个人的残疾背景和我的事业走到一起
44	Through a class I was taking on social issues in Beijing,	通过我在北京的社交课,
45	I had the opportunity to visit an autism school there	我有机会去那儿的自闭症学校
46	and was introduced to a local disability rights advocacy organization.	并被介绍给当地的一个残疾人权利宣传组织。
47	I ended up interning with them	我最后和他们在一起
48	and got completely absorbed into that community.	完全融入了那个社区
49	I was finally able to see how my family's struggle	我终于能看到我的家人是如何挣扎的
50	was part of something much larger,	是一个更大的问题,
51	and the magnitude of what I found actually shocked me.	以及我发现的震撼力
52	Over a billion people,	超过十亿人
53	an estimated 15 percent of the world's population,	估计占世界人口的15%
54	has some form of disability.	患有某种残疾。
55	And persons with disabilities as a group worldwide	全世界残疾人群体
56	face huge amounts of stigma and disadvantage.	面对着巨大的耻辱和劣势。
57	Like just to use education as an example,	就像用教育作为例子一样
58	of the 240 million children with disabilities in the world,	在世界上2.4亿残疾儿童中,
59	about 50 percent have never been to school.	大约50%从未上过学。
60	I was appalled that I had been studying global human rights	我对研究全球人权感到惊讶
61	at an Ivy League school,	在常春藤联盟学校
62	and even though the problem was so unbelievably huge,	尽管问题如此巨大
63	not once had disability really ever come up.	从来没有一次有残疾真的从来没有出现。
64	So I decided to pivot,	所以我决定选择
65	and I've spent the past decade of my career	我度过了过去十年的职业生涯
66	to disability inclusion in international development.	将残疾问题纳入国际发展。
67	I returned to China on a Fulbright Scholarship	我以富布莱特奖学金回到中国
68	to do research on education and programs for autistic adolescents and adults.	研究自闭症青少年和成年人的教育和方案。
69	I then went on to do research or work with disability organizations	然后,我继续做研究或与残疾组织合作
70	in places like Tanzania, Ireland, and South Africa.	在坦桑尼亚、爱尔兰和南非等地。
71	I now work globally with Special Olympics,	我现在在全球与特别奥运合作,
72	using sport as a platform to teach and promote inclusive attitudes.	利用体育作为教授和促进包容性态度的平台。
73	And what I found is that all over the world,	我发现全世界,
74	even though countries' specific cultural contexts or systems	国家的具体文化背景或制度
75	might be different,	可能不一样
76	the underlying problem of attitude barriers remains the same.	态度障碍的根本问题依然存在。
77	And the research backs me up.	研究为我提供了支持。
78	The second most cited barrier to inclusion after lack of data	在缺乏数据后被引述的第二大阻碍纳入的因素
79	is negative attitudes towards disability.	是对残疾的消极态度。
80	What people don't realize is that exclusion hurts everyone.	人们没有意识到排斥会伤害每个人
81	The International Labor Organization	国际劳工组织
82	estimates that disability exclusion costs low- and middle-income countries	残疾排斥对中低收入国家造成损失的估计数
83	between three and seven percent of GDP.	占国内生产总值的3%至7%。
84	But the opposite is also true.	但相反的情况也是事实。
85	Inclusion could help everyone.	包容可以帮助每个人。
86	Our research at Special Olympics has found	我们在特别奥运的研究发现
87	that inclusive sport and youth leadership programming	包容性体育和青年领导才能方案
88	has benefits for youth both with and without disabilities,	对残疾和非残疾青年都有好处,
89	especially when it comes to developing	特别是涉及发展
90	key social and emotional skills	关键社会和情感技能
91	everyone needs to succeed	每个人都需要成功
92	in an increasingly diverse and interconnected world.	在日益多样化和相互联系的世界中。
93	And this is held true in countries as different as the United States,	在与美国不同的国家里也是如此
94	China, India, Kenya, and Greece.	中国、印度、肯尼亚和希腊。
95	The good news is there are four things we all can do	好消息是,我们可以做四件事
96	to make the future more inclusive.	使未来更具包容性。
97	Number one, we need to reevaluate our own attitudes towards disability.	第一,我们需要重新评估我们对残疾的态度。
98	I still get questions about whether it is realistic	我仍然有疑问这是否现实
99	to include persons with disabilities in international development programs	将残疾人纳入国际发展方案
100	when even the so-called regular people are struggling.	连所谓的普通人都在挣扎
101	There are still too many stereotypes that associate disability with pity.	将残疾与怜悯联系在一起的定型观念仍然太多。
102	And we're still living with social systems and physical structures	我们还生活在社会体系和物质结构之中
103	that segregate people with disabilities.	隔离残疾人。
104	So fewer people have it as part of their everyday experience,	很少有人有它作为日常经验的一部分,
105	and it still makes them really uncomfortable.	这仍然让他们很不舒服。
106	We need to reevaluate these attitudes.	我们需要重新评估这些态度。
107	Needing accommodation or support does not make a person	需要住宿或支助并不使一个人
108	any less deserving of dignity and respect.	更不值得尊严和尊重
109	This is a matter of justice and equity, not charity.	这是正义和公平的问题,而不是慈善问题。
110	Second, choose to include.	第二,选择包括.
111	Solving this issue is not just a matter of policy.	解决这个问题不仅仅是政策问题。
112	There are plenty of countries that have disability laws on the books	有很多国家有残疾法在书本上
113	or have signed and ratified the United Nations Convention	或已经签署和批准《联合国公约》的国家
114	on the Rights of Persons with Disabilities,	残疾人权利国际公约
115	but there is still a huge gap between what is written in policy	但政策上写的东西之间仍然有很大的差距
116	and what actually happens in practice.	以及实际发生的事
117	And this comes down to all of us.	而此降伏一切众生.
118	We can put pressure on governments to make sure that laws are actually implemented,	我们可以向政府施压,确保法律得到切实实施,
119	but we can also look at where we have the power to affect change.	但我们也可以看看我们在哪里有权力去影响变化。
120	We should be looking at organizations' diversity, equity, and inclusion strategies	我们应研究各组织的多样性、公平性和包容性战略。
121	and see where we can be doing better.	看看我们能做得更好
122	Too often, we still fall short of recognizing disability	往往,我们仍然未能认识到残疾
123	as part of human diversity.	作为人类多样性的一部分。
124	We would all benefit by not only accommodating,	我们都会从中得益的
125	but actively supporting and including persons with disabilities in the workplace.	但积极支持残疾人并将其纳入工作场所。
126	Third, we need to recognize where disability intersects with every issue area.	第三,我们需要认识到残疾与每个问题领域之间的交叉之处。
127	When we talk about gender equity,	当我们谈论性别平等时,
128	we need to be inclusive of women with disabilities	我们需要包容残疾妇女
129	who are actually more likely to be victims of gender-based violence.	他们实际上更容易成为基于性别的暴力的受害者。
130	When we talk about global health and health systems,	当我们谈论全球卫生和卫生系统时,
131	we need to be inclusive of persons with disabilities	我们需要包容残疾人
132	who are more likely to have poor health outcomes,	(b) 更可能健康结果不佳;
133	often not because of their actual disability,	往往不是因为他们的实际残疾,
134	but because of stigma and lack of access to care.	但因为耻辱和得不到护理。
135	Everyone has something they can do to make their work more inclusive,	每个人都有办法让自己的工作更具包容性
136	and together, these collective efforts can result in the cultural shift that we need.	这些集体努力可以共同导致我们需要的文化转变。
137	Finally, and most importantly, don't just listen to me.	最后,最重要的是,不要只是听我说。
138	Listen to persons with disabilities themselves.	听取残疾人自己的意见。
139	All over the world, there are incredible self-advocates,	全世界都有不可思议的自我辩护人
140	like my friend and colleague Ben,	像我的朋友和同事本,
141	who is both legally blind and has an intellectual disability,	既盲人又有智力残疾;
142	and who successfully advocated to the D.C. Department of Transportation	并成功地向华盛顿特区交通部宣传
143	to get voice and sound added to the crosswalks near our office	将声音和声音添加到我们办公室附近的十字路口
144	to make it safe for him and people like him to cross the street going to work.	让他和像他这样的人安全过街去上班
145	Or Brina from the Philippines,	或者来自菲律宾的Brina
146	whose parents were told upon her Down syndrome diagnosis	他们的父母被告知她唐氏综合症的诊断
147	that they shouldn't set their expectations too high,	他们不应该把期望定得太高,
148	but who has become an assistant preschool teacher	却成为一名助教
149	and a UNESCO champion for inclusion in education.	以及教科文组织促进融入教育的倡导者。
150	Or Hasib, who has actually been on a TEDx stage before me	或者哈西布,我之前在TEDx舞台上
151	to speak out against the stigma he has faced	公开谴责他面对的耻辱
152	as an autistic young person in Pakistan.	作为巴基斯坦自闭症青年。
153	And I could go on and on and on with others	我可以跟别人一起继续
154	who have shared their lived experience of disability	分享过残疾经历的人
155	in books, speeches, blogs, podcasts, and social media.	在书籍、演讲、博客、播客和社交媒体中。
156	When you're looking for ways to make your work more inclusive,	当你在寻找方法让你的工作更具包容性,
157	seek out the voices of persons with disabilities,	征求残疾人的意见,
158	really take the time to listen to what they have to say	真的需要时间听他们说的话
159	and follow their lead.	并遵循他们的路线。
160	Disability has always been and will always be a part of my life.	残疾一直是而且将永远是我的生活的一部分。
161	Erin and I deserve to live in a world	我和艾琳应该生活在一个世界上
162	where she has more opportunities to be supported and included.	在那里,她有更多的机会得到支持和包容。
163	Erin, Ben, Brina, and Hasib are only four out of over a billion people	艾琳,本,布丽娜,和哈西布只有四亿
164	who are just trying to find belonging and live their best lives	他们只是想找到归属过他们最好的生活
165	in a world that was not designed for them.	在一个不是为他们设计的世界上
166	Indeed, a world that was designed to hold them back.	的确,一个旨在阻止它们的世界。
167	Not because it had to be that way,	不是因为它必须是那样,
168	but because people built systems around attitudes that other and exclude them.	但因为人们围绕着别人的态度建立系统并排斥他们
169	And all of those people have family members like me,	那些人都有像我这样的家人
170	whose lives are shaped by this issue,	他们的生活是由这个问题决定的,
171	and communities who are affected, whether they realize it or not.	以及受影响的社区,无论他们是否意识到这一点。
172	Disability inclusion is not something nice that we do for those people.	包容残疾人对我们这些人来说不是一件好事。
173	It is something critical that needs to come from all of us.	关键的东西需要来自我们所有人。
174	Thank you.	谢谢

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